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If you are interested in attending the conference, please fill in the form and one of the trustees will come back to you.
You can also email your enquiry to:
Alternatively contact Nick on 07799 063 066
Accommodation Rates (per night)Single Occupancy
£99.00Family room (1 child)
£109.00Family room (2 children)
Daily Delegate Price
The daily delegate rate for all attendees will be (with the exception of SMSers who will not be charged):
This price includes all tea/coffee and lunch
Meals & Entertainment
There will be evening meals and entertainment available on Saturday and Sunday.
Price for an adult:
£20.00Price for a child:
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Salli Hunt, Worcestershire
The conferences for us, began with education, learning more about the syndrome, and getting the best up to date professional advice from people who actually know what the syndrome is! We have now attended 4 conferences, and they have morphed into an education piece followed by a social event for us. We get to meet up with friends old and new, and those we’ve spoken to online for years. We feel an affinity with the people we are with. Our children, and their siblings can play together and form friendships like we do – with people who just ‘get it’. The weekends are well organised, and have always given me a good few tips to ‘take away’ to use, from a mix of professionals and other parents – after all, the parents are the experts on SMS!
- Dr Alison Male, Consultant in Clinical Genetics at Great Ormond Street
- Ann C.M. Smith, M.A., D.Sc.(Hon), Sr. Genetic Counselor
- Professor Chris Oliver BSc, MPhil, PhD, CPsychol, University of Birmingham