Following the success of our last conference in 2015, we shall once again be returning to the St Johns Hotel in Solihull.
The format will remain the same, with the main conference days as Saturday and Sunday. There will be entertainment on both Saturday and Sunday nights and a daytime creche will also be available (please note that the creche is now full). We will also be holding an informal meeting space for newcomer families to meet some of the more experienced families, as well as the trustees on Friday night – there will be some light finger foods available.
Please find information regarding arrivals on Friday and Saturday below:
On Monday morning we will once again be organising an informal gathering session for families staying over on the Sunday night, this will provide a time to relax and connect with other families after the hectic weekend. There will be full access to the hotel facilities and a late morning buffet will be provided free of charge (please note there will be no creche facility on Monday).
09:00 – Registration opens
09:30 – Conference Navigator or Newbies
10:00 – Conference sessions commence.
12:00 – Lunch
13:30 – Afternoon sessions begin
17:30 – End of first day.
09:00 – Smith-Magenis Syndrome (SMS) Foundation UK Annual General Meeting
09:30 – Conference sessions commence.
12:30 – Lunch
14:00 – Afternoon sessions begin
17:30 – Conference closes.
We are pleased to introduce our outline programme for the 2017 conference.
Informal get together for those staying over prior to the conference. Information on Friday arrivals can be found here.
- The History and Development of Smith-Magenis Syndrome
- Genetics for beginners
- Understanding and managing behaviours
- Augmentive Communication
- DLA, SDS & Other Benefits
- Mental Capacity Act (Surgery Sessions)
- Achieving Objectives
- Wills and Trusts (Irwin Mitchell Solicitors)
- A Siblings’ Experience of SMS
- The Smith-Magenis Syndrome (SMS) Foundation UK Annual General Meeting
- Sleep Research Update
- Medical Management
- Diet and Weight Management
- What are Circadian Rhythms and Why does it matter?
- Positive Behaviour Support
- Transition from Residential School to Adult Services
- CAMHS Role (Services and Systems – Part 1) and (Approaches to Medication – Part 2)
- Physiotherapy (Adults)
Dinner, magician, live band, disco
Family chill-out with light lunch