Friday 3rd May – Monday 6th May
The SMS UK Foundation Conference 2019 is over. We look forward to welcoming families and professionals interested in Smith-Magenis Syndrome to our next conference on Friday 30th April – Monday 3rd May 2021.
If you have any questions or feedback for the 2019 conference please get in touch firstname.lastname@example.org.
Our outline schedule for the 2019 conference is now available
Prices at a glance
Accommodation Rates (per night)
Single (1 person)
Double (2 people)
Triple (2 adults + 1 child)
Family (2 adults + 2 children)
Family plus (2 adults + 3 children)
Prices include bed and breakfast
Daily Delegate Price
The daily delegate rate for all attendees will be (with the exception of SMSers who will not be charged):
This price includes all tea/coffee and lunch
The price is per child, per day in the creche. SMS children and adults are free of charge.
Daily delegate prices include lunch on the day(s) you are attending the conference. Tea, coffee and water will available throughout the conference sessions.
Sample Attendance Prices
For a family of four comprising 2 Adults and 2 children (one with SMS) to attend the Saturday and Sunday including creche for both children for 2 days.
Price for family of 4 (Sat – Sun)
For a family of four comprising 2 Adults and 2 children (one with SMS) to attend the full weekend (Fri – Mon) including creche for both children for 2 days.
Price for family of 4 (Fri – Mon)
Prices include breakfast (for duration of stay) and lunch and dinner on Sat and Sun. There will be a few nibbles provided on Fri evening, and light finger foods on Monday lunchtime.
Further information about the conference and creche prices are available on our Prices page.
SMS Conference Fun Facts
Attendees with SMS at 2017 conference
Years Supporting our members
The photobooth was extremely popular at the 2017 conference, so we thought we’d book it again this year. JP Entertainments…
With over 15 years in the entertainment industry, rest assured that Justin Perks will bring all the music, dance, and…
The conferences for us, began with education, learning more about the syndrome, and getting the best up to date professional advice from people who actually know what the syndrome is! We have now attended 4 conferences, and they have morphed into an education piece followed by a social event for us. We get to meet up with friends old and new, and those we’ve spoken to online for years. We feel an affinity with the people we are with. Our children, and their siblings can play together and form friendships like we do – with people who just ‘get it’. The weekends are well organised, and have always given me a good few tips to ‘take away’ to use, from a mix of professionals and other parents – after all, the parents are the experts on SMS!
I must admit the first conference that I went to was extremely overwhelming and i was very emotional on my return home. Since then I have attended 2 more conferences and it’s been amazing chatting to other families and realising that you are not alone. We are all facing the same challenges and there is no judgement. SMS is such a hard syndrome to deal with and often I feel desperate. With the friendships that I have made, the group’s that have been set up like the wattsapp group and the Facebook site it’s the support that I need that helps me get by.
Yes there was a wealth of information and insight, some amazing professionals and inspirational stories, and the whole thing was really well organised, but the thing that struck me was that, despite the subject matter being completely SMS the whole weekend in every organised session and every informal conversation, it was actually a surprising chance to relax and unwind with a group of people all sharing a common bond.