My name is Diane Erth. I live in San Diego, CA with my husband, Joe, and my 8 year old son, Max. I am a Stay at Home Mom but I feel I deserve a more elaborate title as I find myself wearing many hats and often several at the same time. Max was diagnosed with Smith-Magenis Syndrome at just 30 days old. We did a lot of research online and found PRISMS. We reached out to the then President and were able to ask questions about his daughter. It was good to talk to another parent about our concerns. I have made it a personal goal to welcome and offer support to all SMS families and to be available to answer questions and help the newly diagnosed families. Sometimes, venting to another SMS parent is what is needed.
PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS.